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Bridging the gap: Capturing UK trans health discourse in the Archive of Tomorrow

  • Alice Austin

The barriers trans and non-binary people in the UK face when accessing healthcare have been well documented in recent years, and a proliferation of sites produced by and for trans communities have emerged to bridge the gaps left by suspended services and growing waiting times. Concurrently, a number of high-profile legislative cases and public debates have underscored the extent to which the provision of information about trans* health is defined and shaped by societal and political contexts. This chapter discusses the challenges of collecting online trans* health information in a rapidly changing and hotly contested environment, and explores the questions around representation and the ethical implications of collecting online health discourse.

  • Keywords:
  • BnT,
  • heritagization,
  • legal deposit,
  • web archiving,
+ Show More

Alice Austin

University of Edinburgh, United Kingdom - ORCID: 0009-0007-5586-2571

  1. Adams, Nicholas Norman. “Scraping’ Reddit posts for academic research? Addressing some blurred lines of consent in growing internet-based research trend during the time of Covid-19”, International Journal of Social Research Methodology 27:1 (2002) 47-62. DOI: 10.1080/13645579.2022.2111816
  2. Caswell, Michelle, Marika Cifor, and Mario H. Ramirez. “To Suddenly Discover Yourself Existing’: Uncovering the Impact of Community Archives.” The American Archivist 79, no. 1 (2016): 56-81. DOI: 10.17723/0360-9081.79.1.56
  3. Council of Europe Committee on Equality and Non-Discrimination. “Combating rising hate against LGBTI people in Europe Doc. 15425”. Belgium: Council of Europe, 2021. Retrieved 7 March 2024. <https://web.archive.org/web/20230228040752/https://pace.coe.int/en/files/29418/html>
  4. Eveleigh, Alexandra Margaret Mary. “Crowding out the Archivist? Implications of Online User Participation for Archival Theory and Practice.“ PhD diss. University College London, 2015. <https://discovery.ucl.ac.uk/id/eprint/1464116>
  5. Flinn, Andrew. “Community Histories, Community Archives: Some Opportunities and Challenges.” Journal of the Society of Archivists 28, no. 2 (2007): 151-76. DOI: 10.1080/00379810701611936
  6. Gill-Peterson, Jules. “Three Questions for Every Paper of Record That Publishes a Story on Trans Healthcare”. Sad Brown Girl (blog) Substack. 15 June 2022. Retrieved 8 February 2024. <http://web.archive.org/web/20220630001614/https://sadbrowngirl.substack.com/p/three-questions-for-every-paper-of>
  7. Hunter, Ruth F., Aisling Gough, Niamh O’Kane, Gary McKeown, Aine Fitzpatrick, Jules, Bergis, Ed Summers, and Vernon Mitchell. “Documenting the now-white paper: ethical considerations for archiving social media content generated by contemporary social movements: challenges, opportunities, and recommendations.“ Documenting the Now (2018). Retrieved 23 January 2024. <https://web.archive.org/web/20240202062719/https://www.docnow.io/docs/docnow-whitepaper-2018.pdf>
  8. Ketelaar, Eric “Tacit Narratives: The Meanings of Archives,” Archival Science 1 (2001): 131-41. DOI: 10.1007/BF02435644
  9. Platt, Lucinda. “Why ethnic minorities are bearing the brunt of COVID-19”. Research for the World (blog) London School of Economics and Political Science. 9 November 2021. Retrieved 17 Jan 2024. <https://web.archive.org/web/20230925103916/https://www.lse.ac.uk/research/research-for-the-world/race-equity/why-ethnic-minorities-are-bearing-the-brunt-of-covid-19>
  10. Spieker, Sven. “The Big Archive: Art from Bureaucracy“. London: MIT Press, 2008.
  11. Tansey, Eira. “No One Owes Their Trauma to Archivists, or, the Commodification of Contemporaneous Collecting” (blog). 5 June 2020. Retrieved 15 Jan 2024. <https://web.archive.org/web/20200627194117/http://eiratansey.com/2020/06/05/no-one-owes-their-trauma-to-archivists-or-the-commodification-of-contemporaneous-collecting/>
  12. Topping, Alexandra. “Young trans people accessing treatment outside NHS may get safeguarding referral”. The Guardian. 14 October 2022. Retrieved 6 February 2024. <https://web.archive.org/web/20221102130414/https://www.theguardian.com/society/2022/oct/14/young-trans-people-accessing-treatment-outside-nhs-may-get-safeguarding-referral>
  13. Trans Healthcare Intelligence, “Trans Healthcare Information”. Retrieved 12 February 2024. <http://web.archive.org/web/20230815183354/https://www.transhealthcareintel.com/>
  14. TransActual. “Bridging Prescriptions”. Retrieved 9 February 2024. <https://web.archive.org/web/20240121233504/https://transactual.org.uk/bridging-prescriptions/>
  15. Hunter, Ruth F., Aisling Gough, Niamh O’Kane, Gary McKeown, Aine Fitzpatrick, Tom Walker, Michelle McKinley, Mandy Lee, and Frank Kee. “Ethical Issues in Social Media Research for Public Health”. American Journal of Public Health 108 (2018): 343-348. DOI: 10.2105/AJPH.2017.304249
  16. Wall, Catherine S.J., Alison J. Patev, Eric G. Benotsch. “Trans broken arm syndrome: A mixed-methods exploration of gender-related medical misattribution and invasive questioning”. Social Science & Medicine 320 (2023). DOI: 10.1016/j.socscimed.2023.115748
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  • Publication Year: 2024
  • Content License: CC BY 4.0
  • © 2024 Author(s)

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  • Publication Year: 2024
  • Content License: CC BY 4.0
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Chapter Information

Chapter Title

Bridging the gap: Capturing UK trans health discourse in the Archive of Tomorrow

Authors

Alice Austin

Language

English

DOI

10.36253/979-12-215-0413-2.07

Peer Reviewed

Publication Year

2024

Copyright Information

© 2024 Author(s)

Content License

CC BY 4.0

Metadata License

CC0 1.0

Bibliographic Information

Book Title

Exploring the Archived Web during a Highly Transformative Age

Book Subtitle

Proceedings of the 5th international RESAW conference, Marseille, June 2023

Editors

Sophie Gebeil, Jean-Christophe Peyssard

Peer Reviewed

Number of Pages

362

Publication Year

2024

Copyright Information

© 2024 Author(s)

Content License

CC BY 4.0

Metadata License

CC0 1.0

Publisher Name

Firenze University Press

DOI

10.36253/979-12-215-0413-2

ISBN Print

979-12-215-0412-5

eISBN (pdf)

979-12-215-0413-2

eISBN (xml)

979-12-215-0414-9

Series Title

Proceedings e report

Series ISSN

2704-601X

Series E-ISSN

2704-5846

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