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Book Chapter

Quality of life in Health Care: focus on patients

  • Laura Benedan
  • Angela Digrandi
  • Paolo Mariani
  • Cinzia Pilo
  • Mariangela Zenga

In this work, we show a narrative review conserning instruments to measure the quality of Life in Health Care from a patients point of view. In particular, we pay attention on the construction of questionnaire and on the choice of the areas/settings (physical, emotional, social, functional, economical,...).

  • Keywords:
  • Quality of Life,
  • Questionnaire,
  • Patients,
  • Health care,
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Laura Benedan

University of Milano-Bicocca, Italy - ORCID: 0000-0003-0427-2487

Angela Digrandi

CNR, Italy

Paolo Mariani

University of Milano-Bicocca, Italy - ORCID: 0000-0002-8848-8893

Cinzia Pilo

REB Onlus Foundation, Italy

Mariangela Zenga

University of Milano-Bicocca, Italy - ORCID: 0000-0002-8112-5627

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  3. Benedan, L., Hachem, M. El, Galeone, C., Mariani, P., Pilo, C., Tadini, G. (2022). Assessing the Quality of Life of patients with Epidermolysis Bullosa (EB): Development of a patient-centered questionnaire. In Book of short papers - 10th International Con
  4. Boulkedid, R., Abdoul, H., Loustau, M., Sibony, O., Alberti, C. (2011). Using and reporting the Delphi method for selecting healthcare quality indicators: a systematic review. PLoS One, 6(6), e20476.
  5. Centers for Disease Control and Prevention (2000). Measuring healthy days: Population assessment of health-related quality of life. Centers for Disease Control and Prevention, Atlanta, Georgia.
  6. Pacinelli, A., (2008). Metodi per la Ricerca Sociale Partecipata, Franco Angeli, Milano.
  7. Patrick, D.L., Deyo, R.A. (1989). Generic and disease-specific measures in assessing health status and quality of life. Med Care, 27(3 Suppl), pp. S217-232.
  8. Rabin, R., de Charro, F. (2001). EQ-5D: a measure of health status from the EuroQol Group. Annals of Medicine, 33(5), pp. 337—342.
  9. Selim, A.J., Rogers, W., Fleishman, J.A., Qian, S.X., Fincke, B.G., Rothendler, J.A., Kazis, L.E. (2009). Updated U.S. population standard for the Veterans RAND 12-item Health Survey (VR-12). Qual Life Res., 18(1), pp 43-52.
  10. Trevelyan, E. G., Robinson, N. (2015). Delphi methodology in health research: How to do it? European Journal of Integrative Medicine, 7(4), pp. 423–428.
  11. Ware, J. E., Jr., Gandek, B., Guyer, R., Deng, N. (2016). Standardizing disease-specific quality of life measures across multiple chronic conditions: development and initial evaluation of the QOL Disease Impact Scale (QDIS®). Health Quality Life Outcomes,
  12. Warner, K., See, W., Haerry, D., Klingmann, I., Hunter, A., May, M. (2018). EUPATI Guidance for Patient Involvement in Medicines Research and Development (R&D); Guidance for Pharmaceutical Industry-Led Medicines R&D. Front Med (Lausanne), 5, pp. 270.
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  • Publication Year: 2023
  • Pages: 129-133
  • Content License: CC BY 4.0
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  • Publication Year: 2023
  • Content License: CC BY 4.0
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Chapter Information

Chapter Title

Quality of life in Health Care: focus on patients

Authors

Laura Benedan, Angela Digrandi, Paolo Mariani, Cinzia Pilo, Mariangela Zenga

Language

English

DOI

10.36253/979-12-215-0106-3.23

Peer Reviewed

Publication Year

2023

Copyright Information

© 2023 Author(s)

Content License

CC BY 4.0

Metadata License

CC0 1.0

Bibliographic Information

Book Title

ASA 2022 Data-Driven Decision Making

Book Subtitle

Book of short papers

Editors

Enrico di Bella, Luigi Fabbris, Corrado Lagazio

Peer Reviewed

Publication Year

2023

Copyright Information

© 2023 Author(s)

Content License

CC BY 4.0

Metadata License

CC0 1.0

Publisher Name

Firenze University Press, Genova University Press

DOI

10.36253/979-12-215-0106-3

eISBN (pdf)

979-12-215-0106-3

eISBN (xml)

979-12-215-0107-0

Series Title

Proceedings e report

Series ISSN

2704-601X

Series E-ISSN

2704-5846

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